Donors and Friends,
In late November I received some really disappointing news: I was told I could not be in the first-in-human trial on Dec 4th due to my two co-morbidities (Blood cancer & Amyloidosis), plus an autoimmune concern.
Normally, being deselected for this potentially life-saving treatment with only 15 days to go would be devastating, but as you would expect of any fighter pilot, I have Plan B already in place and Plans C, D & E remain in backup.
Perhaps more crucial than the co-morbidities, it was pointed out that I have low “interferon gamma secretions” which means that my NK cells would have difficulty differentiating cancer cells from normal cells.
Unfortunately, this condition makes three fatal outcomes more likely with the Natural Killer cell infusion during the trial.
1. Cytokine Storm
2. Graft – Host Disease
3. Anaphylactic Shock
Since “Super-charged Natural Killer Cells” haven’t been tried on humans before, the doctors have concluded that there are too many unknowns for them to risk my life by including me in the very first trial on humans. The fact that I waived all liability and accepted the risk had no impact on the final decision.
The Dec 4th trial went very well for my two former fellow patients. They “felt fantastic” but blood work and MRI will ultimately determine success. The doctors will use the data gained to assess my options for the next phase of testing in 4-7 months.
In the meantime, Plan B happens Jan 27th in Santo Domingo and Plan C is ongoing with RVA Regenerative Wellness appointments as well as visits to Dr. Juergan Winkler in Carlsbad, CA.
My mission remains to make wonderful memories every day while investigating and applying for other appropriate clinical trials for B-cell cancers and ATTR Amyloidosis.
I would not be able to do any of that without your generous, heartfelt and gratefully received donations. I will forever be in your debt.
If you have any questions about the Top Gun movies, the TOPGUN school itself, fighter planes or my medical situation, please feel free to DM me and get a quick response.
I will be asking for your mailing address, so I can send you a color postcard of one of my aviation pics.
Thanks again to you all for putting me in a position to have options with these two incurable, progressive diseases. You have all given me the precious gift of hope.
You are wonderful people Your funds shall only be used on treatments for my two incurable diseases.