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Update March 31, 2024

Dear Family, Friends and Faithful Supporters,
Thank you so much for your continued prayer and support of Ed! You have been such a blessing! Ed continues to improve! Praise the Lord! Some days are better than others. However, all in all it seems like things are looking up-this gives us hope!
The funds you have so generously donated for Ed’s fight against Parkinson’s Disease have not only helped but made the difference in his progress!  The major impact has been primarily the result of new physicians, one-on-one therapy, and home care providers. All of these expenses are not covered by insurance.
  • Dr. Nita Chen and Dr. Janet Lee, Ed’s physicians – approximately $900 per month.
  • Occupational and Physical therapy (3 times per week) – $1500 per month.
  • Daily care providers at home – approximately $8000 per month. 
Ed continues to see Dr. Nita Chen, a Concierge Neurologist, and Movement Disorder Specialist. Since the first visit with Dr. Chen in January, she has been in contact with Ed (or Roxanne) every week, sometimes even daily, either by text, phone, Zoom, or at the house. She is slowly and carefully making adjustments to Ed’s medications. Once stabilized, she will  begin to adjust his brain implant (DBS). 
Dr. Chen referred Ed to Leann Vitale, an Occupational Therapist and Specialist in Parkinson’s Disease Treatment. Ed sees Leann twice a week for one-on-one therapy. Dr Chen also referred Ed to Rogue Physical therapy, a therapeutic gym exclusive to patients with Parkinson’s Disease. Ed works with various physical therapists at Rogue once a week for personalized exercise (exercise is more like medicine for people with Parkinson’s). 
Ed’s nightly care providers not only take care of Ed, but also allow Roxanne to go to work every day after an uninterrupted night’s sleep. Win-win!
Ed is working hard every day to gain independence. Thank you for helping him with this goal! 
With much love and overflowing gratitude,
Ed and Roxanne Nilsen

Update January 5, 2024

New year, new perspective! We have hope for the future!

Thanks to your incredible, overwhelming generosity and prayerful support, many new things have been put in place to help Ed fight Parkinson’s Disease.

Up to now, a neverending rotation of family, friends, and neighbors have been graciously blessing us by caring for Ed while Roxanne is at work during the week. A very special thank you to all of you!

In mid December, thanks to your graciousness we were able to hire a caregiver for Ed to work Sunday-Thursday nights. This has allowed Roxanne to sleep at night! Thank you! We are still searching for another caregiver to cover the other two nights as well as help out during the day.

On Jan 3, 2024, we hired a concierge physician, Dr. Nita Chen, a Parkinson’s and DBS specialist. This now allows Ed 24/7 access to the medical care he needs whether it be in person, virtual, or even at home. Dr. Chen is not covered by our insurance at all but this happened because of your donations! Another BIG THANK YOU!

This week we are working to contract mobile therapy (PT, OT, and Speech) to come to the house regularly and work with Ed to help improve his daily living. With Parkinson’s, movement is medicine; if we can get Ed moving more he can actually feel better during the day. Again, mobile home therapy is not covered by our medical insurance but your donations are making this happen!

Ed’s condition has not changed, however, he is very hopeful for the future with the new access to care and therapy.

This is a lifelong battle. Your generosity and prayers encourage Ed and Roxanne to forge through each and every day.  Thank you for being part of our extended family and showing God’s love to us through you! We all have been blessed with different gifts, thank you so much for sharing yours!  We’re so glad to be in the family of Christ!

Love, Roxanne and Ed and their family 

UPDATE 11/30/2023

We have continued to be so overwhelmed by the generosity of every single one of you! We have surpassed our initial goal of raising $100,000.00 and have increased our goal to $250,000.00 in order to continue to meet Ed’s medical needs. 
We thank you all so much for your support, love, and prayers.

Love, Ed & Roxanne’s family 


Dear friends and family, we are overwhelmed with the outpouring of love and generosity! THANK YOU! Ed is still battling the effects of Parkinson’s. He is recovering from some falls and injuries as well as a recent hospitalization for a TIA. But he’s hanging in there!

Psalm 16 comes to mind, “I keep my eyes always on the Lord. With him at my right hand, I will not be shaken.”

We are praying for wisdom, intervention, peace, rest, and recovery—whatever that looks like! Thank you again for the help, support, and blessings so freely given to us!
Ed and Roxanne

Ed’s life has been a remarkable journey of unwavering service and selfless love, particularly through his dedicated service to the church. Throughout his lifetime, he has touched the hearts of numerous people with his boundless compassion and care. His story is one of profound kindness and the embodiment of Christian values.

However, Ed’s life has taken a challenging turn due to his battle with Parkinson’s disease. This year, the situation has worsened, causing Ed to retire early from his job as a pastor and necessitating a higher level of medical care. The burden of increasing medical expenses is a heavy one for the Nilsen family to bear.

This is where the community’s support is urgently needed. By contributing to the Nilsen family, we can help alleviate the financial strain associated with the essential medical care that Ed needs.

Ed’s life and the challenges he faces serve as a reminder of the profound impact one individual can have on a community and the importance of coming together to support those in need during their most challenging times.

For those who may not be in a position to provide financial assistance, the power of collective prayer offers a source of hope. Joining together in prayer, we can seek miraculous healing for Ed and entrust his well-being and the welfare of the Nilsen family to the divine care and provision of the Lord. We can specifically be praying for the Lord to provide the right medical care and people to be with Ed while Roxanne is at work.

We so so appreciate any donations and prayers! Please share this link to help us get the word out.


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