Goal reached!! Praise God.
You are all so amazing. Thank you thank you thank you. I could not be doing this particular adoption journey without you all!!!
Love, Chloe
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Friends –
We are nearing the finish line!
I am sooooo incredibly grateful for your support of our family in this season. It gives me such hope. I am reporting back to you that the neurofeedback seems to be working!!! And, to ask for your assistance to help us get to the “finish line.”
The 25 sessions of neurofeedback (plus an at-home device) seems to be accomplishing what we have been hoping and praying for: calming Braylynn’s brain so that she isn’t operating from a consistent crisis mode.
When our brains are in crisis, it is as if we are in the kitchen and then suddenly notice a wild tiger is right behind us. Panic. Fear. Find Safety. Braylynn’s brain has been stuck in that mode for years. So, small inconveniences, such as “I’m sorry you don’t prefer this, but this is what is for dinner” seems equivalent to an attack from a tiger for Braylynn.
Since she returned home in late August, this has been slowly changing. In the past, we were having crises (serious crises) several times a week. Now, in the past 4+ months, we have had a total of 2. This is an amazing transformation. In combination with family therapy (trauma and attachment), we are making real progress towards healing. She is healing, but this therapy will increase her ability to heal.
So, we are moving towards closing out the neurofeedback over the next 6 months. We will continue to travel to Akron, OH for therapy, but less and less frequently. The plan moving forward is 9 more sessions and end in May or June.
Costs Breakdown – $4410
- $810 therapy x 9
- $3,000 for neurofeedback device rental
- $600 for gas, tolls and food
Thank you for your support, your friendship and your prayers.
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ORIGINAL CAMPAIGN:
Friends,
[Future asks for help are unlikely, since this is basically the final frontier for B – let’s pray it helps!!]
Your generous support earlier this year helped me to attend the NavRAD conference in April. This resulted in us pursuing a therapy for B called neurofeedback. This is a therapy that utilizes natural neuroplasticity to help the brain function in a healthier way. B’s brain is kind of…stuck…for a lack of a better term. So, much of the effort she is putting into healing isn’t having a very big impact on her mind, heart or behaviors. We’d like for MOST of her effort have an impact, but in order for that to happen, her brain first needs to correct itself back into a calmer more functional space.
Neurofeedback is one of the very few HOPEFUL things that I learned about at the conference from the experts, and so I am hoping you might be able to help us continue down this path of healing. A doctor friend of ours located this facility (https://www.alternative-therapeutics.com/) that meets all the needed criteria to help B. It is a little…woo woo sounding, but the theory is solid and the research for kids with RAD is hopeful. We had our initial intake meeting and B really liked the therapist (yay!) – this week we see her brain map (cool!!).
The down side of it all is that it is not covered by Medicaid and is paid completely out of pocket.
Will you help me help B? All gifts are tax exempt through givetaxfree.org.
Costs breakdown
- $3150 therapy x minimum of 20 sessions (highly likely that she will need additional)
- $350 Intake and Initial Brain Map
- $200 Rental neurofeedback device set up (so she can keep up the work at home)
- $500/mo. device rental
- Mileage and meals 1-2/week